Difficulties faced by caregivers of children with Autism spectrum disorder in getting their child diagnosis in Kazakhstan
 
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Karaganda Medical University, Kazakhstan
 
 
Publication date: 2023-04-26
 
 
Popul. Med. 2023;5(Supplement):A1313
 
ABSTRACT
Background and Objectives:
Autism Spectrum Disorder is a developmental disorder associated with significant difficulties throughout a humans life and is characterized by repetitive sensorimotor behavior and social communication disorder. The purpose of this study is to overview the caregivers’ journey to the diagnosis of Autism Spectrum Disorder in their children in Kazakhstan. To identify what influences parents decisions in matters of diagnosis and what problems families with children with Autism Spectrum Disorder face when providing them with diagnostic care.

Methods:
This study is a mixed interview of caregivers of children diagnosed with Childhood Autism, Atypical Autism about difficulties in the process from initial concern about the childs development to formal diagnosis.

Results:
There is the steady increase in the number of children with Developmental Disorders and the rather late age of the final diagnosis in Kazakhstan. Despite the fact that caregivers seek specialized help in a timely manner as soon as they notice alarming signs, the final diagnosis can only be obtained after a long time. Reasons for this may be both the low awareness of autism among health providers the environment, and the parents themselves, as well as the inaccessibility of diagnostic assistance in the form of long waiting lists.

Conclusion:
Extremely important point is to increase awareness of ASD among medical workers who conduct routine screening of the psychophysical development of young children in Kazakhstan. Given the public health emergency posed by ASD and the long period between the first parental problems and a diagnosis of autism, there is an urgent need to improve our methods for early detection of ASD in Kazakhstan.

ISSN:2654-1459
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